We All Should Be Tired…..

I looked at my calendar today and I have so many appointments this month, I should literally think about sleeping in my car. HS seems to be the thread that is affecting all of the goings on in my body. I ended up going to see my GI doctor last week. I knew there was something wrong with my stomach. HS affects every part of my body.  Fast forward to diverticulitis, CT scan and possible colonoscopy, I am just over everything. Some days it’s like all I have time for is to be sick.  It can be a bit much sometimes. Can’t I just stress out over the “normal” stuff like everyone else?

There are times when I look up from own life to try to participate in living among others and it can be overwhelming too. I want to do so much, but I don’t have the energy. I have so many plans to cook, clean, volunteer, dance, date and write letters the old fashioned way. Yeah, if I do at least one of those things each day, I have literally won! Not everyone understands how HS basically dictates almost everything in your life.  So now we have had Harvey and Irma and all their devastation. Now I think there are two other storms coming too! Sheesh! Donating and prayer does not seem to be enough, but it’s all I can do right now. Don’t even try to watch the news because if it’s not about politics it’s about the looming possibility of war. Having a son in the U.S. Army comes with its own anxiety. Traffic accidents, robberies, assaults, inclement weather, job stress, life stress, climate control, financial stress it’s a wonder anyone can literally get out a bed each day. There is so much going on in the world and we should all be tired.

So when do we take a mental break before our mind, body and soul does it for us? Honestly, there is not a designated time so we take the little moments as they come. As I writing this post, I am doing one of my favorite things. I am listening to Insecure on the television laughing as if it is the first time I am watching.  After this, I plan to go to my room and turn on my sound machine and listen to the ocean while I read. I have learned the hard way, if you don’t dump the day, you wake up the next morning and repeat it.

 

Life Is Great. (terms and conditions may apply!)

This is the post excerpt.

Woosa….. I have to take a breath. So much pressure surrounding my very first post. Well, here goes… hey ya’ll! Yes I am an Alabama native and it definitely shows.  I started this blog with not only myself in mind, but with all of us who have an illness that is not always visible to the naked eye. I mean sure I can just lift up my left arm and play connect the dots with my cysts and scars, but I don’t go around pit flashing people! I have Hidradenitis Supprotiva. It’s a mouthful, so HS for short is perfectly fine. It is very painful and can be very debilitating.  With all of the pain, bandages, inability to wear white clothing or plan an outing on any given day, this can also cause even the strongest person to be sad. That’s why I decided to start this blog to not only bring awareness to HS and other chronic illnesses, but to provide motivation, laughter and therapeutic approach  to living life. I want to get to know my readers and share in our journey. I will share information about HS and mental health as well as some of the anecdotes and quotes that keep me going. As you know there are days when I say NOPE and pull the covers over my head and I plan on sharing those moments too. I am looking forward to getting to know and hearing from my readers. Let’s do this…. (together with some assistance because I can barely walk today!)