Coming From All Directions

I made it. I survived my dad’s birthday without completely falling apart.  Of course there were tears, but I can honestly say happy tears. As I sat in pain all day because the cyst on my abdomen had ruptured, I smiled and thought about the pain my dad was in with renal failure. I sucked it up as best I could and continued with my day. I planned on it being a great day with nothing but happy thoughts and memories. It was a good idea at least. I ended up watching the news and felt my heart breaking all over again. Hurricane Harvey has literally destroyed the lives of so many people. I watched as families lost everything they owned and still managed to be thankful just for being alive. I wanted to do something to help so I decided to donate. As I was walking to the room to get my wallet, a sharp pain from my abdomen took me to my knees and I was literally helpless. The cyst had torn and gotten worse. I looked down and felt so defeated.

I sat on the floor for an hour after I went to what I call my medical bag and cleaned the wound. That was my day, gone. I did not feel like bandaging up and going out. I am sick of wearing tights and t-shirts because to those who don’t understand Hidradenitis it looks like you are just being lazy and not wanting to dress up.  The more and more I thought about how HS just changed my plans, the more and more angry I became. Then my puppy came in and sat beside me looking as if he was saying, “Ok Momma what  is plan B, I am here to help.” A tear dropped and I told him we needed to get the wallet to donate to those affected by the hurricane. It was not about me or my pain, but about helping someone else. The pain is always going to be here until a cure is found. I can’t wait to be kind until I feel great because I would never be. I looked around to see what I could hold on for balance as I got up.  I grabbed my chair and rose to my feet. Every step I made towards my bag felt like a gang of people doing the electric slide on my stomach as I lay on the floor cheering them on. Finally I got to the wallet and donated in the name of my father. He was so kind and never focused on his pain. Neither would I.

I was able to make it to my recliner once I finished with my computer. The recliner was my bed and Gambino slept in his tent after fighting sleep like an infant. I was not able to make it back to the bedroom. It was too far. I stayed in the chair until morning. I will get up and try again.

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